With the loss of Jason's job we thought it would be a good idea to have the girls checked by their pediatrician since we would be without insurance 2 weeks later. During the visit their pediatrician detected a heart murmur on Addie. He said he did not want to alarm us but we needed to have it checked to see if it was innocent or not. Best case scenario it would be an innocent murmur, worst case; a hole in her heart. Jason asked what he meant by innocent and he said, "Innocent meaning just that, innocent; not OJ innocent"...lol. He sent us for a chest x-ray, and an ECG, then referred us to a pediatric cardiologist. The pedi. cardio. sent us for an echo too.
Two days before Christmas Addison was diagnosed with an ASD, Large Secundum Atrial Septal Defect...she has a hole in her heart. The ultrasound tech. did not do her job right and the test was incomplete so they were unable to tell us the size of the hole. Since we did not have all the details at that point in time we kept the diagnosis a little hush hush.
She had her echo done again this past Friday with her pedi. cardio. and we were told the news that we were dreading to hear...
Addie's hole is BIG. It is actually causing one side of her heart to enlarge. She needs to have surgery soon and is not a candidate for catheterization which means she will have open-heart surgery. Of course as a Mother I wanted to know exactly what that entails so thanks to the internet I googled it. If you want to read what the Mayo Clinic had to say click here.
As a Parent, reading that your babies heart will be stopped is absolutely devastating. No matter how many of these procedures they have done or how amazing the hospital and staff is, it is OUR baby that will be on that table. The sweet little girl her big sister, Mommy, and Daddy prayed for. A good friend of mine said that God would not let us get this far, place that baby in our arms, and then take her away. I have to believe that she is right for no other possibility is acceptable for me.
Her case will be presented to the board at Loma Linda on Wednesday and we should receive a call by Friday to let us know where we go from here. I will post any updates on the blog.
We are praying and keeping faith that the Lord will see us through this obstacle as he has all others. Please keep our baby girl in your prayers too.
~Shea
PS. The Lord sure does work in mysterious ways. We thought Jason getting laid off was so tragic...when in fact is has brought this all to light for us. Without the lay off we would not have found out about her heart this soon. As a friend shared in a story recently at MOPS..."Remember that the next time your little hut seems to be burning to the ground. It just may be a smoke signal that summons the Grace of God."
Addie's heart. The hole is measured by the dotted line connecting the two little pieces of wall that do exist. That entire area should be solid.
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